How Did Kirton Champion the Fight Against ALS Before His Passing at 67?

Mark Kirton: A Legacy Beyond the Ice

Mark Kirton, a former NHL center and passionate advocate for ALS awareness, has left a profound impact on the lives he touched. At the age of 67, he passed away on a Sunday, leaving behind a legacy that transcends his six seasons on the ice. Diagnosed with amyotrophic lateral sclerosis (ALS) in 2018, Kirton faced the debilitating effects of this progressive disease with courage and determination. His journey not only highlights the struggles of living with ALS but also showcases the incredible power of community and collaboration in the fight against this relentless condition.

Understanding ALS: The Disease That Changed Kirton's Life

ALS, commonly known as Lou Gehrig's disease, is a neurodegenerative disorder that primarily affects motor neurons in the brain and spinal cord. This leads to a progressive decline in muscle control, resulting in severe physical limitations. The diagnosis is often devastating, as the average lifespan following diagnosis ranges from two to five years. Symptoms can include:

• Muscle weakness and atrophy
• Loss of mobility
• Difficulties in speaking and swallowing
• Respiratory failure

For Kirton, the diagnosis was not just a personal battle; it was a call to action. Despite being confined to a wheelchair, he sought to make a difference in the lives of others affected by ALS.

From Diagnosis to Advocacy: Kirton's Journey

In September 2020, just two years after his diagnosis, Kirton met a group of PALS (people with ALS) who were dedicated to creating a patient-led initiative aimed at addressing the challenges associated with the disease. This initiative, known as ALS Action Canada, brought together individuals and families affected by ALS to advocate for research, funding, and awareness. Kirton's involvement demonstrated his unyielding spirit and commitment to finding a cure.

The Rise of the ALS Super Fund

Following nearly three years of relentless effort, Kirton achieved a significant milestone in December 2023. The seven Canadian NHL franchises—Toronto Maple Leafs, Montreal Canadiens, Ottawa Senators, Winnipeg Jets, Edmonton Oilers, Calgary Flames, and Vancouver Canucks—came together to support the ALS Super Fund. This historic collaboration aimed to raise funds and awareness for ALS research, showcasing how sports can unite communities for a greater cause.

Kirton’s leadership and determination were pivotal in this initiative, demonstrating that even in the face of adversity, one can inspire change and drive significant progress in the fight against ALS.

The Milestone Announcement on Parliament Hill

In September 2024, at a prestigious event held at the Wellington Building on Parliament Hill in Ottawa, Kirton's efforts culminated in an extraordinary announcement. Hockey Hall of Famer Darryl Sittler, a longtime friend of Kirton, revealed that the ALS Super Fund had reached an incredible milestone of $1 million. This achievement not only represented a financial contribution to ALS research but also served as a testament to Kirton's influence and the collective efforts of the hockey community to support those affected by this devastating disease.

Remembering Kirton: A Hero to Many

During the same event, legendary hockey player Wayne Gretzky honored Kirton, declaring him "a hero to me." This acknowledgment from one of the greatest players in the history of the sport underscores Kirton's impact not just on his peers but on the broader community. His courage in the face of ALS and his unwavering commitment to advocacy resonate deeply within the hearts of those who knew him and those who are inspired by his story.

The Importance of ALS Awareness and Research Funding

Kirton's journey highlights the critical need for increased awareness and funding for ALS research. As a complex and currently incurable disease, ALS poses significant challenges, not only for those diagnosed but also for their families and caregivers. The funds raised through initiatives like the ALS Super Fund are essential for:

• Supporting research to find a cure
• Developing new treatments to improve quality of life
• Providing resources and support for patients and families

Through raising awareness and fostering community support, we can help change the narrative around ALS and work toward a future where those diagnosed with the disease have access to effective treatments and, ultimately, a cure.

How You Can Get Involved in ALS Advocacy

Mark Kirton’s legacy is a powerful reminder of the impact one individual can make in the fight against ALS. Here are several ways you can get involved in advocacy and support efforts:

1. Participate in Local Fundraising Events: Join or organize local events to raise funds for ALS research and awareness.
2. Educate Yourself and Others: Increase your knowledge about ALS and share information within your community.
3. Support ALS Organizations: Contribute to or volunteer with organizations dedicated to ALS research and support, such as ALS Action Canada.
4. Advocate for Policy Changes: Engage with policymakers to push for increased funding and support for ALS research and patient care.

By taking action, you can help continue Kirton’s legacy and contribute to the fight against ALS.

Frequently Asked Questions about ALS

What are the early signs of ALS?

Early signs of ALS can vary, but they often include muscle weakness, difficulty in speaking, and muscle twitching. If you or someone you know is experiencing these symptoms, it's essential to consult a healthcare professional for evaluation.

Is there a cure for ALS?

Currently, there is no cure for ALS. However, research is ongoing, and various treatments are available to help manage symptoms and improve the quality of life for those affected by the disease.

How can I support someone with ALS?

Supporting someone with ALS involves offering emotional support, assisting with daily tasks, and helping them access resources for medical care and support services. Being there to listen and provide companionship can also be incredibly valuable.

How can awareness about ALS be increased?

Raising awareness about ALS can be achieved through education, community events, social media campaigns, and collaboration with local organizations. Sharing personal stories, like that of Mark Kirton, can also inspire others to become involved in advocacy efforts.

Conclusion: A Call to Action

Mark Kirton’s journey is not just a story of personal struggle; it is a testament to the resilience of the human spirit and the power of community. His advocacy for ALS awareness and research funding has paved the way for significant advancements in the fight against this disease. As we remember Kirton, we are reminded of our collective responsibility to support those affected by ALS and to work toward a future where no one has to face this diagnosis alone. Together, we can continue his legacy and strive for a world where ALS is no longer a terminal diagnosis but a condition with effective treatments and, ultimately, a cure.

As we honor Mark Kirton, how will you contribute to the fight against ALS and support those affected by this disease? #ALSawareness #MarkKirton #FightALS